ADNP Kids Research Foundation
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YEAR END 2017 LETTER FROM THE PRESIDENT

Thinking Back - Looking Forward


Dear Friends, It has been a very exciting and successful year for the ADNP Kids Research Foundation! In keeping with our mission statement, we have accomplished some amazing projects---here is the short list---
  • Received 501(c)3 status as an IRS accredited non profit organization.
  • Biomarker (early tooth eruption) publication made big news!
  • ​Announcement of ADNP Syndrome Study at the Seaver Center for Autism at Mount Sinai for Research and Treatment.
    • Donated over $15,000 directly through the foundation with an additional $20,000 outside of the foundation.
  • Announcement and support for advancement toward the Cornois Neurosciences clinical trial of CP201/NAP for ADNP Syndrome.
  • Continued support and enrollment of the TIGER STUDY - The Investigation of Genetic Exome Research.
  • Continued support and enrollment of the Cognitive Genetics continuation of ADNP Syndrome project based out of the University of Antwerp.
  • Participated in several events in Washington DC (Capital, NIH, FDA, Rare Disease Day) to raise awareness about ADNP.
  • ADNP Syndrome presentations given in Seattle and Philadelphia

In an effort to create a diverse Board of Directors with experience that will benefit the mission of the foundation, we have made some changes to our team. To simplify we have reduced the board to 5 volunteer Board of Director positions (with 3 parents and 2 non-parents).
  • Sandra Sermone (parent) Founder/President
  • Genie Egerton-Warburton (parent) Vice President
  • Lenore Rath (parent) Secretary
  • Tim Mosier (non-parent) Treasurer
  • Debbie Abraham (non-parent) Director

The Board of Directors of the ADNP-KRF is engaged in supporting the ADNP community in multiple ways. We ask that you will also support our mission and our projects by any or all the following ways---
  • Sign up for our ADNP-KRF newsletter
  • Join our social media sites
  • Volunteer at a ADNP-KRF event
  • Hold a fundraiser
  • Make a donation

Please visit www.adnpfoundation.org for more information.

All of these accomplishments and future projects have been made possible by an all-volunteer team and our generous and caring supporters. Thank you!

Sandra Sermone
President
ADNP Kids Research Foundation
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All rights reserved. No portion of the content of this website may be reproduced in any manner without the written permission of the author/creator.   Any information used from this website must also have credit noted to ADNP Kids Research Foundation / www.adnpfoundation.org.
Disclosure: This page represents information known to the best of our knowledge.  Given the sensitivity and fast changing pace of research and drug development, some of the information posted on our website www.adnpfoundation.org may be inaccurate or not complete, therefor this information should be confirmed by the reader. Additionally, the medical information on this website is not substitute for personal diagnosis or medical care advise. Families and patients should consult a medically qualified clinician in all matters relating to genetic diagnosis, disease management and health. Information on ADNP research is a very fast-moving field and while the information here is believed to be the best available at the time of publication, some facts may later be updated or change. Please see additional disclosures on our PRIVACY POLICY page.
  • About
    • What is ADNP
    • Our Story
    • Our Mission
    • Our Team
    • Medical and Scientific Advisory Board
    • 501(c)(3) Determination
    • Inclusivity Statement
  • RESEARCH
    • Research Projects
    • Research Strategy
    • Ketamine Trial
    • Ketamine Trial Publication
    • Ketamine Update
    • Path to a cure
    • NET STUDY
    • publications
  • Families
    • Newly Diagnosed
    • ADNP Patient Registry
    • Contact Registry
    • Understanding the Basics
    • Worldwide Parent Ambassadors
    • contact us
    • ADNP Family Conference >
      • HIGHLIGHTS- ADNP Syndrome Family Conference
      • TSA Travel Help
      • #CureADNP
  • NEWS
    • NET Collaboration Study
    • Ketamine Trial Phase 2 Announcement
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • ADNP STORE
  • DONATE/SUPPORT
    • Warrior Fun Run 2022 >
      • Past Fun Run Pictures
      • Sponsorship Opportunity
    • Boston Marathon
    • Third Party Fundraising
  • About Us new