ADNP Kids Research Foundation
  • About
  • RESEARCH
    • Research Update 2.2024
    • ADNP Patient Registry & Natural History
    • Research Projects 2023
    • Research Strategy
    • Ketamine Trial
    • Ketamine Trial Publication
    • Ketamine Update
  • FAMILIES
  • NEWS
    • Giving Tuesday
    • NET Collaboration Study
    • Ketamine Trial Phase 2 Announcement >
      • Glimpse of Hope RDD 2020
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • DONATE/SUPPORT
    • Warrior Fun Run >
      • Past Fun Run Pictures
      • Sponsorship Opportunity
    • Third Party Fundraising
    • ADNP STORE
  • contact us
  • ADNP STORE

Warrior Fun Run 2022

Established in 2016, the ADNP Kids Research Foundation is an accredited non-profit 501(c)(3) charity.  We are a 100% volunteer organization run by families of children who suffer from this rare neurological genetic disorder, ADNP syndrome. 

In 2020 we began our annual ADNP Warrior Fun Run, and it was a virtual fundraiser, made to spread awareness, raise money for research and to just have FUN FUN FUN!  We create teams named after our ADNP Warriors, and try to have a lot of fun.

Charity organizations like ours NEED HELP from Sponsors also, because there are only 450 children diagnosed in the entire world.  Because it affects such a small patient population, there is just no interest in industry or governmental funding.  But we cannot wait, because TIME IS BRAIN!  Each day that passes, our children suffer and loose the opportunity for their brains to develop correctly and the clock is ticking - we need to find treatments for our children as fast as possible!

To date, we are the worlds largest contributor of ADNP research in the world, sponsoring more than $2 million dollars directly into research!  But we need millions more, and we cannot find treatments and a cure without the generous support from sponsors and donors.  Check out our RESEARCH page to see many of the projects that we are currently working on!


Please join our WARRIOR FUN RUN!  You can run, walk, bike, dance around (aka 'fun') or do just about anything you want to participate!

UNFORTUNATLY THE 2023 WARRIOR FUN RUN WAS CANCELLED BUT LOOK OUT 2024, HERE WE COME!

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Privacy Policy  |  Terms of Services  |  Other Policies  
All rights reserved. No portion of the content of this website may be reproduced in any manner without the written permission of the author/creator.   Any information used from this website must also have credit noted to ADNP Kids Research Foundation / www.adnpfoundation.org.
Disclosure: This page represents information known to the best of our knowledge.  Given the sensitivity and fast changing pace of research and drug development, some of the information posted on our website www.adnpfoundation.org may be inaccurate or not complete, therefor this information should be confirmed by the reader. Additionally, the medical information on this website is not substitute for personal diagnosis or medical care advise. Families and patients should consult a medically qualified clinician in all matters relating to genetic diagnosis, disease management and health. Information on ADNP research is a very fast-moving field and while the information here is believed to be the best available at the time of publication, some facts may later be updated or change. Please see additional disclosures on our PRIVACY POLICY page.
  • About
  • RESEARCH
    • Research Update 2.2024
    • ADNP Patient Registry & Natural History
    • Research Projects 2023
    • Research Strategy
    • Ketamine Trial
    • Ketamine Trial Publication
    • Ketamine Update
  • FAMILIES
  • NEWS
    • Giving Tuesday
    • NET Collaboration Study
    • Ketamine Trial Phase 2 Announcement >
      • Glimpse of Hope RDD 2020
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • DONATE/SUPPORT
    • Warrior Fun Run >
      • Past Fun Run Pictures
      • Sponsorship Opportunity
    • Third Party Fundraising
    • ADNP STORE
  • contact us
  • ADNP STORE