Established in 2016, the ADNP Kids Research Foundation is an accredited non-profit 501(c)(3) charity. We are a 100% volunteer organization run by families of children who suffer from this rare neurological genetic disorder, ADNP syndrome.
In 2020 we began our annual ADNP Warrior Fun Run, and it was a virtual fundraiser, made to spread awareness, raise money for research and to just have FUN FUN FUN! We create teams named after our ADNP Warriors, and try to have a lot of fun.
Charity organizations like ours NEED HELP from Sponsors also, because there are only 450 children diagnosed in the entire world. Because it affects such a small patient population, there is just no interest in industry or governmental funding. But we cannot wait, because TIME IS BRAIN! Each day that passes, our children suffer and loose the opportunity for their brains to develop correctly and the clock is ticking - we need to find treatments for our children as fast as possible!
To date, we are the worlds largest contributor of ADNP research in the world, sponsoring more than $2 million dollars directly into research! But we need millions more, and we cannot find treatments and a cure without the generous support from sponsors and donors. Check out our RESEARCH page to see many of the projects that we are currently working on!
Please join our WARRIOR FUN RUN! You can run, walk, bike, dance around (aka 'fun') or do just about anything you want to participate!
UNFORTUNATLY THE 2023 WARRIOR FUN RUN WAS CANCELLED BUT LOOK OUT 2024, HERE WE COME!
In 2020 we began our annual ADNP Warrior Fun Run, and it was a virtual fundraiser, made to spread awareness, raise money for research and to just have FUN FUN FUN! We create teams named after our ADNP Warriors, and try to have a lot of fun.
Charity organizations like ours NEED HELP from Sponsors also, because there are only 450 children diagnosed in the entire world. Because it affects such a small patient population, there is just no interest in industry or governmental funding. But we cannot wait, because TIME IS BRAIN! Each day that passes, our children suffer and loose the opportunity for their brains to develop correctly and the clock is ticking - we need to find treatments for our children as fast as possible!
To date, we are the worlds largest contributor of ADNP research in the world, sponsoring more than $2 million dollars directly into research! But we need millions more, and we cannot find treatments and a cure without the generous support from sponsors and donors. Check out our RESEARCH page to see many of the projects that we are currently working on!
Please join our WARRIOR FUN RUN! You can run, walk, bike, dance around (aka 'fun') or do just about anything you want to participate!
UNFORTUNATLY THE 2023 WARRIOR FUN RUN WAS CANCELLED BUT LOOK OUT 2024, HERE WE COME!
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