ADNP Kids Research Foundation
  • About
    • What is ADNP
    • Our Story
    • Our Mission
    • Our Team
    • Medical and Scientific Advisory Board
    • 501(c)(3) Determination
    • Inclusivity Statement
  • RESEARCH
    • Research Projects
    • Research Strategy
    • Ketamine Trial
    • Ketamine Trial Publication
    • Ketamine Update
    • Path to a cure
    • NET STUDY
    • publications
  • Families
    • Newly Diagnosed
    • ADNP Patient Registry
    • Contact Registry
    • Understanding the Basics
    • Worldwide Parent Ambassadors
    • contact us
    • ADNP Family Conference >
      • HIGHLIGHTS- ADNP Syndrome Family Conference
      • TSA Travel Help
      • #CureADNP
  • NEWS
    • NET Collaboration Study
    • Ketamine Trial Phase 2 Announcement
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • ADNP STORE
  • DONATE/SUPPORT
    • Warrior Fun Run 2022 >
      • Past Fun Run Pictures
      • Sponsorship Opportunity
    • Boston Marathon
    • Third Party Fundraising
  • About Us new
Picture
Dear Potential Sponsor,

We would love to invite you to help our mission of helping to find out children treatments and a cure for ADNP syndrome by becoming a Sponsor for our "3rd" annual Virtual Warrior Fun Run to be held September 24, 2022.

Established in 2016, the ADNP Kids Research Foundation is an accredited non-profit 501(c)(3) charity.  We are a 100% volunteer organization run by families of children who suffer from this rare neurological genetic disorder, ADNP syndrome. 

Charity organizations like ours NEED HELP from Sponsors like yourself because there are only 400 children diagnosed in the entire world.  Because it affects such a small patient population, there is just no interest in industry or governmental funding.  But we cannot wait, because TIME IS BRAIN!  Each day that passes, our children suffer and loose the opportunity for their brains to develop correctly and the clock is ticking - we need to find treatments for our children as fast as possible!

To date, we are the worlds largest contributor of ADNP research in the world, sponsoring more than $1.5 million dollars directly into research!  But we need millions more, and we cannot find treatments and a cure without the generous support from sponsors and donors.

We are laser-focused on advocacy, education and most of all, funding research initiatives that result in scientific and advancements, including but not limited to:
  • the ADNP Ketamine FDA drug trial: the Foundation funded phase 2A which demonstrate safety, tolerability, and efficacy of low-dose ketamine, and now, the Foundation will fund the next phase of the trial that is currently in the design approval process with the FDA,
  • a high-throughput screening project that will run thousands of FDA-approved drugs using ADNP neuronal cell lines and via Artificial Intelligence, look for connected therapeutic small molecules,
  • a multi-lab curative gene therapy program working to address disease specific management, eradication, or reversal of the effects of this devastating complex neurological genetic disorder,
  • the creation of our “ADNP Assets”, which includes a patient registry, natural history study, biorepository, IPS cell lines, and ADNP animal models that will be readily available to use in testing new or existing drugs and treatments. "ADNP Assets" will reduce barriers typical to rare disease research by improving access to specimens and data for researchers, pharmaceutical and biotech companies to advance science that benefits our children.

Your generous contribution will help us fund research, create programs, advocate and move toward accelerated therapeutic solutions and a cure for ADNP Syndrome.

We invite you to join us as a sponsor for this event by choosing from one of our Sponsorship Packages.

To become a sponsor:
Email admin@adnpfoundation.org.
Make checks payable to:
ADNP Kids Research Foundation
Tax ID#: 30-0964243
24500 NW 132nd Circle
Brush Prairie, WA 98606 
Picture

Picture

SPONSORSHIP PACKAGES

Platinum Package:  $10,000
  • Listed as a TOP Platinum Sponsor on our race website and ADNP foundation website
  • Your company logo will "link" to your company website and will be displayed on our race website and our ADNP foundation website
  • Opportunity to share a company promotional video on our ADNP Kids Research Foundation's social media accounts prior to race day to promote your business
  • 10 complimentary race entries 
  • 10 complimentary ADNP Foundation stickers

Gold Package:  $5,000
  • Listed as a Gold Sponsor on our race website and ADNP foundation website
  • Your company logo on our race website and our ADNP foundation website
  • 5 complimentary race entries
  • 5 complimentary ADNP Foundation stickers

Silver Package:  $1,000
  • Listed as a Gold Sponsor on our race website and ADNP foundation website
  • Your company logo on our race website and our ADNP foundation website
  • 5 complimentary race entries
  • 5 complimentary ADNP Foundation stickers
​Bronze package:  $500
  • Listed as a Gold Sponsor on our race website and ADNP foundation website
  • Your company logo on our race website and our ADNP foundation website
  • 5 complimentary race entries
  • 5 complimentary ADNP Foundation stickers


​
​Event Pricing for Participation
​Adults 18 and older:  $25
Children 17 and younger: $10


​Deadlines
​Deadlines for sponsorship application submissions:  August 15, 2022
Deadlines for sponsorship application payment:  August 24, 2022


​Important Dates
​Event Date:  September 24, 2022
Time:  ALL DAY (24-hours) VIRTUAL event
Location: Virtual
Guidelines: Please follow your local city, state and or country's COVID guidelines


​Social Media
​Connect with other racers and families using #adnpfunrun


Picture

WHAT IS ADNP SYNDROME

ADNP Syndrome (also known as Helsmoortel-VanDerAa Syndrome / HVDAS) is an extremely rare neurodevelopmental and autism genetic brain disorder caused by a mutation or deletion in the ADNP (Activity Dependent Neuroprotective Protein) gene.

The ADNP (activity dependent neuroprotective protein) gene is a crucial brain gene that is highly expressed. It affects brain formation, connectivity and development, as well as brain function and acts as protein-protecting nerve cells against electrical blockade (ie. protection against inability of nerve cells to communicate electrically). It codes for ADNP, a ubiquitously expressed protein involved in chromatin remodeling and synaptic function. Studies have identified ADNP as a regulator of axonal transport, dendritic spine plasticity and autophagy. The ADNP gene also affects many other organs and functions of the body.

Recent studies have placed the ADNP gene as a top single gene genetic cause of autism spectrum disorder (ASD) and accounts for approximately 0.2% of all cases of ASD. It is also the only known protein significantly decreasing in the serum of Alzheimer's disease (AD). ADNP Syndrome can cause a multitude of problems with the neurological, cardiovascular, endocrine, immune, musculoskeletal and gastrointestinal systems, as well as vision, hearing, growth, feeding and sleep. Developmentally, it can cause mild to severe delays in intelligence, speech and global motor planning, (including gross motor, fine motor and oral motor). It causes behavior disorders such as Autism Spectrum Disorder (ASD) in a substantial proportion of cases. In fact, it is estimated: ADNP to be mutated in at least 0.17% of genetic autism cases, making it one of the most frequent ASD-associated genes known to date.

​Visit WHAT IS ADNP to learn more!
Picture
Picture
Picture
Privacy Policy  |  Terms of Services  |  Other Policies  
All rights reserved. No portion of the content of this website may be reproduced in any manner without the written permission of the author/creator.   Any information used from this website must also have credit noted to ADNP Kids Research Foundation / www.adnpfoundation.org.
Disclosure: This page represents information known to the best of our knowledge.  Given the sensitivity and fast changing pace of research and drug development, some of the information posted on our website www.adnpfoundation.org may be inaccurate or not complete, therefor this information should be confirmed by the reader. Additionally, the medical information on this website is not substitute for personal diagnosis or medical care advise. Families and patients should consult a medically qualified clinician in all matters relating to genetic diagnosis, disease management and health. Information on ADNP research is a very fast-moving field and while the information here is believed to be the best available at the time of publication, some facts may later be updated or change. Please see additional disclosures on our PRIVACY POLICY page.
  • About
    • What is ADNP
    • Our Story
    • Our Mission
    • Our Team
    • Medical and Scientific Advisory Board
    • 501(c)(3) Determination
    • Inclusivity Statement
  • RESEARCH
    • Research Projects
    • Research Strategy
    • Ketamine Trial
    • Ketamine Trial Publication
    • Ketamine Update
    • Path to a cure
    • NET STUDY
    • publications
  • Families
    • Newly Diagnosed
    • ADNP Patient Registry
    • Contact Registry
    • Understanding the Basics
    • Worldwide Parent Ambassadors
    • contact us
    • ADNP Family Conference >
      • HIGHLIGHTS- ADNP Syndrome Family Conference
      • TSA Travel Help
      • #CureADNP
  • NEWS
    • NET Collaboration Study
    • Ketamine Trial Phase 2 Announcement
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • ADNP STORE
  • DONATE/SUPPORT
    • Warrior Fun Run 2022 >
      • Past Fun Run Pictures
      • Sponsorship Opportunity
    • Boston Marathon
    • Third Party Fundraising
  • About Us new