ADNP Kids Research Foundation
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TIGER STUDY
University of Washington
​Bernier Lab

​

If your child has received an ADNP diagnosis, you are also eligible to participate in the TIGER STUDY at the University of Washington.  They are doing research on genetic caused syndromic autism gene mutations such as ADNP.  In a recent publication the lead investigator of the study Dr. Raphe Bernier stated that "ADNP is edging its way up the research agenda" and that is because more and more ADNP families are participating.   


The TIGER Study conducts a comprehensive assessment of individuals with genetic events associated with ASD, ID, and/or DD in order to better describe how different genetic events impact behavior in children and adults.
Participation includes a visit to the University of Washington in Seattle during which we will conduct a clinical assessment, neurocognitive assessment, EEG, 2 dimension and 3 dimension photos, language testing, medical examination, a blood draw, an optional skin biopsy, and collect a detailed developmental history.

Expenses related to the study visit (such as airfare and lodging) will be covered by the study and subjects will be reimbursed $100 for their participation.

 Please contact them for more current information at THE TIGER STUDY.

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Privacy Policy  |  Terms of Services  |  Other Policies  
All rights reserved. No portion of the content of this website may be reproduced in any manner without the written permission of the author/creator.   Any information used from this website must also have credit noted to ADNP Kids Research Foundation / www.adnpfoundation.org.
Disclosure: This page represents information known to the best of our knowledge.  Given the sensitivity and fast changing pace of research and drug development, some of the information posted on our website www.adnpfoundation.org may be inaccurate or not complete, therefor this information should be confirmed by the reader. Additionally, the medical information on this website is not substitute for personal diagnosis or medical care advise. Families and patients should consult a medically qualified clinician in all matters relating to genetic diagnosis, disease management and health. Information on ADNP research is a very fast-moving field and while the information here is believed to be the best available at the time of publication, some facts may later be updated or change. Please see additional disclosures on our PRIVACY POLICY page.
  • About
    • What is ADNP
    • Our Story
    • Our Mission
    • Our Team
    • Medical and Scientific Advisory Board
    • 501(c)(3) Determination
    • Inclusivity Statement
  • RESEARCH
    • Research Projects
    • Research Strategy
    • Ketamine Trial
    • Ketamine Trial Publication
    • Ketamine Update
    • Path to a cure
    • NET STUDY
    • publications
  • Families
    • Newly Diagnosed
    • ADNP Patient Registry
    • Contact Registry
    • Understanding the Basics
    • Worldwide Parent Ambassadors
    • contact us
    • ADNP Family Conference >
      • HIGHLIGHTS- ADNP Syndrome Family Conference
      • TSA Travel Help
      • #CureADNP
  • NEWS
    • NET Collaboration Study
    • Ketamine Trial Phase 2 Announcement
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • ADNP STORE
  • DONATE/SUPPORT
    • Warrior Fun Run 2022 >
      • Past Fun Run Pictures
      • Sponsorship Opportunity
    • Boston Marathon
    • Third Party Fundraising
  • About Us new