ADNP Kids Research Foundation
  • About
  • RESEARCH
    • Research Update 2.2024
    • ADNP Patient Registry & Natural History
    • Research Projects 2023
    • Research Strategy
    • Ketamine Trial
    • Ketamine Trial Publication
    • Ketamine Update
  • FAMILIES
  • NEWS
    • Giving Tuesday
    • NET Collaboration Study
    • Ketamine Trial Phase 2 Announcement >
      • Glimpse of Hope RDD 2020
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • DONATE/SUPPORT
    • Warrior Fun Run >
      • Past Fun Run Pictures
      • Sponsorship Opportunity
    • Third Party Fundraising
    • ADNP STORE
  • contact us
  • ADNP STORE
Picture

Ryan 1999 - 2022

Picture
Ryan was a special young man who was filled with love, laughter, and kindness. He experienced joy in the simple things and anyone lucky enough to spend time with him got to see the world through his eyes.

Colorful blinking lights and spinning toys would cause his face to light up with joy. Riding shotgun on the Gator in the open fields would fill his face with excitement. Cuddling up with Curious George, his favorite stuffed animal while watching Monsters Inc. would let you know he was relaxed. One of his favorite channels from a very early age was the Catholic Channel where he enjoyed Mother Angelica saying the Rosary. He also loved to go for rides in the car with mom by his side in the back seat with him. One of his favorite places to be on a hot summer day was with his mom and family playing on the beach at their cottage.

"Ry Ry" was blessed to have a family that loved him beyond measure and a team of supporters that were part of his extended family. Ryan was a warrior and a teacher. He had ADNP, a rare genetic syndrome which symptoms include intellectual disability, autism spectrum disorder, and impacts the development of speech and motor skills. His life presented him with many challenges, but he had an amazing amount of strength and purpose.

What Ryan brought to the lives of everyone he encountered was the opportunity to break down their own barriers and open their hearts to experience compassion, patience and unconditional love. That was his gift to everyone he met and he was a great teacher for so many. His smile would light up a room and fill any heart that was open.
Picture
Picture
Privacy Policy  |  Terms of Services  |  Other Policies  
All rights reserved. No portion of the content of this website may be reproduced in any manner without the written permission of the author/creator.   Any information used from this website must also have credit noted to ADNP Kids Research Foundation / www.adnpfoundation.org.
Disclosure: This page represents information known to the best of our knowledge.  Given the sensitivity and fast changing pace of research and drug development, some of the information posted on our website www.adnpfoundation.org may be inaccurate or not complete, therefor this information should be confirmed by the reader. Additionally, the medical information on this website is not substitute for personal diagnosis or medical care advise. Families and patients should consult a medically qualified clinician in all matters relating to genetic diagnosis, disease management and health. Information on ADNP research is a very fast-moving field and while the information here is believed to be the best available at the time of publication, some facts may later be updated or change. Please see additional disclosures on our PRIVACY POLICY page.
  • About
  • RESEARCH
    • Research Update 2.2024
    • ADNP Patient Registry & Natural History
    • Research Projects 2023
    • Research Strategy
    • Ketamine Trial
    • Ketamine Trial Publication
    • Ketamine Update
  • FAMILIES
  • NEWS
    • Giving Tuesday
    • NET Collaboration Study
    • Ketamine Trial Phase 2 Announcement >
      • Glimpse of Hope RDD 2020
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • DONATE/SUPPORT
    • Warrior Fun Run >
      • Past Fun Run Pictures
      • Sponsorship Opportunity
    • Third Party Fundraising
    • ADNP STORE
  • contact us
  • ADNP STORE