ADNP Kids Research Foundation
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ADNP Family Conference and Scientific Symposium at UCLA

***2020*** UPDATE
Due to the pandemic, we were unable to plan our second conference.  Stay tuned for more information about 2021.  We hope to plan a a virtual conference, and if safe, a small in person conference for families.  More to come...... 


In November 2019, we held the first ADNP Family Conference and Scientific Symposium at UCLA in California.  We had close to 100 attendees from around the world, and were able to Facebook live broadcast the entire conference so families unable to attend could watch online.  The event was SPONSORED by:  GeneDx, Preventive Genetics, The Summer Neuro-Peptide Group and the Diana Sermone Family Trust.

Click here to see the ADNP Syndrome Family Conference 2019 HIGHLIGHTS

ABOUT ADNP KIDS RESEARCH FOUNDATION

The ADNP Kids Research Foundation is dedicated to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for patients worldwide. Founded in 2016, seeking to build a network for those diagnosed with ADNP Syndrome, ADNP Kids Research Foundation is the largest support and research organization dedicated to ADNP Syndrome in the world.  ADNP Kids Research Foundation believes that to effectively unravel the mysteries of ADNP Syndrome, the international worlds of medical science, research, and families must work together toward a common goal: discover treatments and cures while assuring a better quality of life for those living with the disease.

ABOUT THE CONFERENCE

​The ADNP Kids Research Foundation is excited to host our first ever ADNP Family Conference and Scientific Symposium, bringing together families, children, researchers and clinicians.

This conference is for parents of children with ADNP Syndrome. Families attending will hear about current studies, findings and projects surrounding ADNP, have one on one access with experts sharing the latest research, ask questions, have a unique opportunity to connect with other parents, and attend a lunch and scientific symposium.


This conference is free to parents and siblings of children with ADNP syndrome and directly invited academic and industry participants. If you are not a parent of a child with ADNP Syndrome or are an outside researcher and would like to attend, please contact admin@adnpfoundation.org to learn about ability and fees.

LOCATION

UCLA Campus, California
The UCLA campus is located in West Los Angeles and is convenient to local area attractions. These include the Getty Center, Staples Center, the California Science Center, Universal Studios, Disneyland® Resort, Beverly Hills, and the Santa Monica Pier

November 3, 2019
ADNP Family Conference and Scientific Symposium
UCLA Campus
Building:  Kerckhoff Hall 
Banquet Room:  Charles E. Young Grand Salon (2nd floor)
Address:  520 Portola Plaza, Los Angeles CA 90095 
This address will drop you off at the building immediately across the street from the Grand Salon of the Kerckhoff building.


Online maps can be found here:
http://map.ucla.edu/downloads/pdf/UCLA_Campus_Colored_Map.pdf
and the 2nd floor Kerckhoff Map is here:
http://legacy.asucla.ucla.edu/studentunion/su_map_kh_2.asp


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WHEN

November 3, 2019 - Sunday
(Building address will be updated closer to the event, times may change slightly)

9:30am - 10:00am : Check In
10:00am - 12:30pm : ADNP Family Conference, including talks by researchers and clinical teams
12:30pm - 1:30pm : Lunch provided
1:30pm - 3:30pm : Scientific Symposium
4:30 pm:  Event Ends

The lecture will take place in a lecture hall down the street from the Kerckhoff building. For those of you who do not wish to attend, we will have our event space until 4:30 and plan to go to dinner afterwards with anyone interested.  This information will be sent out on the Facebook ADNP Parent Support Page

There is a family meet up happening on Saturday night.  You can be put on the list by accessing the group on the Facebook ADNP Parent Support Page.

If you have questions or concerns please email admin@adnpfoundation.org.

SPEAKERS/DISCUSSIONS

There could be changes made to this list.

PRESENTATION SPEAKERS:
  • Professor Illana Gozes, Tel Aviv University and Coronis Neurosciences
  • Professor Alex Kolevzon, Seaver Autism Center, Icahn School of Medicine at Mount Sinai
  • Dr. Anne Arnett, Bernier Lab, University of Washington
  • Mr. Shlomo Sragovich, Tel Aviv University
  • Professor Daniel Geschwind
  • Dr. Tom Nakamachi, University of Toyama
  • Dr. Markus Haimsaat, Charite University Medicine Berlin
  • Sandra Sermone, ADNP Kids Research Foundation​
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REGISTER FOR THE CONFERENCE!

Registration closed

To read about conference highlights or watch the recordings click HERE.

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LODGING AND GROUND TRANSPORTATION

LODGING:
The suggested lodging noted by UCLA for their conference are as follows:
The W Hotel Los Angeles - West Beverly
930 Hilgard Ave, Los Angeles Ca 90024
(310) 208-8765

Kimpton Hotel Palomar
10740 Wilshire Blvd, Los Angeles Ca 90024
(310) 475-8711

*These are just a couple of recommendations of hotels close to the UCLA campus, there are many more options for families to choose from.

LOCAL NEIGHBORHOODS AND THINGS TO DO:

UCLA Campus
Explore all that the UCLA campus has to offer — museums, landmark buildings displaying stunning architecture, performances from the Center for the Art of Performance (CAP) at UCLA, world-renowned gardens, and more.

Westwood Village
Westwood Village is UCLA's unofficial "college town." This local shopping and dining district directly south of campus is only a several minute walk from most major campus attractions and buildings. Westwood has a prominent place in Los Angeles film and entertainment history, with several vintage landmark theaters.

Beverly Hills & Hollywood
Beverly Hills is one of the most well-known neighborhoods and shopping districts in the world, boasting many upscale retail stores, fashion houses, and restaurants along famous streets like Rodeo Drive. Hollywood is a short driving distance from Beverly Hills and is one of the world's meccas for film and entertainment.

Downtown Los Angeles
Downtown Los Angeles is home to both a rich history, found in magnificent buildings like Union Station, and stunning contemporary attractions, like the Walt Disney Concert Hall designed by architect, Frank Gehry. Visitors to the downtown area can easily enjoy a variety of cultural experiences in a single day, simply by walking between the close-knit ethnic neighborhoods in the city, such as Chinatown and Little Tokyo. The city is also divided into different arts and merchant districts, such as the Fashion District, Gallery Row, the Toy District, and more.

Beach Cities
From Malibu to the Port of Los Angeles, the beach cities of Los Angeles are picturesque and home to many iconic attractions, including Santa Monica Pier, the eclectic Venice Beach Promenade, Muscle Beach, and more. Visitors to this area can enjoy fresh seafood, innovative California cuisine, and a variety of outdoor activities, such as biking, hiking, and surfing — perfect ways to take advantage of Southern California's mild and sunny climate.

POPULAR ATTRACTIONS
  • ​Disneyland® Resort — 43.0 miles
  • Dodger Stadium — 13.0 miles
  • Santa Monica Beach & Pier — 6.9 miles
  • Staples Center & L.A. LIVE — 15.9 miles
  • Universal Studios — 10.1 miles
​

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Privacy Policy  |  Terms of Services  |  Other Policies  
All rights reserved. No portion of the content of this website may be reproduced in any manner without the written permission of the author/creator.   Any information used from this website must also have credit noted to ADNP Kids Research Foundation / www.adnpfoundation.org.
Disclosure: This page represents information known to the best of our knowledge.  Given the sensitivity and fast changing pace of research and drug development, some of the information posted on our website www.adnpfoundation.org may be inaccurate or not complete, therefor this information should be confirmed by the reader. Additionally, the medical information on this website is not substitute for personal diagnosis or medical care advise. Families and patients should consult a medically qualified clinician in all matters relating to genetic diagnosis, disease management and health. Information on ADNP research is a very fast-moving field and while the information here is believed to be the best available at the time of publication, some facts may later be updated or change. Please see additional disclosures on our PRIVACY POLICY page.
  • About
    • What is ADNP
    • Our Story
    • Our Mission
    • Our Team
    • Medical and Scientific Advisory Board
    • 501(c)(3) Determination
    • Inclusivity Statement
  • RESEARCH
    • Research Projects
    • Research Strategy
    • Ketamine Trial
    • Ketamine Trial Publication
    • Ketamine Update
    • Path to a cure
    • NET STUDY
    • publications
  • Families
    • Newly Diagnosed
    • ADNP Patient Registry
    • Contact Registry
    • Understanding the Basics
    • Worldwide Parent Ambassadors
    • contact us
    • ADNP Family Conference >
      • HIGHLIGHTS- ADNP Syndrome Family Conference
      • TSA Travel Help
      • #CureADNP
  • NEWS
    • NET Collaboration Study
    • Ketamine Trial Phase 2 Announcement
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • ADNP STORE
  • DONATE/SUPPORT
    • Warrior Fun Run 2022 >
      • Past Fun Run Pictures
      • Sponsorship Opportunity
    • Boston Marathon
    • Third Party Fundraising
  • About Us new