GET READY FOR IT!
We are currently planning a ADNP Syndrome Scientific Symposium and Family Conference either end of year or begining 2024. Please watch social media for announcements.
We are currently planning a ADNP Syndrome Scientific Symposium and Family Conference either end of year or begining 2024. Please watch social media for announcements.
In November 2019, we held the first ADNP Family Conference and Scientific Symposium at UCLA in California. We had close to 100 attendees from around the world, and were able to Facebook live broadcast the entire conference so families unable to attend could watch online.
The event was SPONSORED by: GeneDx, Preventive Genetics, The Summer Neuro-Peptide Group and the Diana Sermone Family Trust.
Click here to see the ADNP Syndrome Family Conference 2019 HIGHLIGHTS
The event was SPONSORED by: GeneDx, Preventive Genetics, The Summer Neuro-Peptide Group and the Diana Sermone Family Trust.
Click here to see the ADNP Syndrome Family Conference 2019 HIGHLIGHTS
ABOUT ADNP KIDS RESEARCH FOUNDATION
The ADNP Kids Research Foundation is dedicated to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for patients worldwide. Founded in 2016, seeking to build a network for those diagnosed with ADNP Syndrome, ADNP Kids Research Foundation is the largest support and research organization dedicated to ADNP Syndrome in the world. ADNP Kids Research Foundation believes that to effectively unravel the mysteries of ADNP Syndrome, the international worlds of medical science, research, and families must work together toward a common goal: discover treatments and cures while assuring a better quality of life for those living with the disease.
ABOUT THE CONFERENCE
The ADNP Kids Research Foundation is excited to host our first ever ADNP Family Conference and Scientific Symposium, bringing together families, children, researchers and clinicians.
This conference is for parents of children with ADNP Syndrome. Families attending will hear about current studies, findings and projects surrounding ADNP, have one on one access with experts sharing the latest research, ask questions, have a unique opportunity to connect with other parents, and attend a lunch and scientific symposium.
This conference is free to parents and siblings of children with ADNP syndrome and directly invited academic and industry participants. If you are not a parent of a child with ADNP Syndrome or are an outside researcher and would like to attend, please contact [email protected] to learn about ability and fees.
This conference is for parents of children with ADNP Syndrome. Families attending will hear about current studies, findings and projects surrounding ADNP, have one on one access with experts sharing the latest research, ask questions, have a unique opportunity to connect with other parents, and attend a lunch and scientific symposium.
This conference is free to parents and siblings of children with ADNP syndrome and directly invited academic and industry participants. If you are not a parent of a child with ADNP Syndrome or are an outside researcher and would like to attend, please contact [email protected] to learn about ability and fees.
LOCATION
UCLA Campus, California
The UCLA campus is located in West Los Angeles and is convenient to local area attractions. These include the Getty Center, Staples Center, the California Science Center, Universal Studios, Disneyland® Resort, Beverly Hills, and the Santa Monica Pier
November 3, 2019
ADNP Family Conference and Scientific Symposium
UCLA Campus
Building: Kerckhoff Hall
Banquet Room: Charles E. Young Grand Salon (2nd floor)
Address: 520 Portola Plaza, Los Angeles CA 90095
This address will drop you off at the building immediately across the street from the Grand Salon of the Kerckhoff building.
Online maps can be found here:
http://map.ucla.edu/downloads/pdf/UCLA_Campus_Colored_Map.pdf
and the 2nd floor Kerckhoff Map is here:
http://legacy.asucla.ucla.edu/studentunion/su_map_kh_2.asp
The UCLA campus is located in West Los Angeles and is convenient to local area attractions. These include the Getty Center, Staples Center, the California Science Center, Universal Studios, Disneyland® Resort, Beverly Hills, and the Santa Monica Pier
November 3, 2019
ADNP Family Conference and Scientific Symposium
UCLA Campus
Building: Kerckhoff Hall
Banquet Room: Charles E. Young Grand Salon (2nd floor)
Address: 520 Portola Plaza, Los Angeles CA 90095
This address will drop you off at the building immediately across the street from the Grand Salon of the Kerckhoff building.
Online maps can be found here:
http://map.ucla.edu/downloads/pdf/UCLA_Campus_Colored_Map.pdf
and the 2nd floor Kerckhoff Map is here:
http://legacy.asucla.ucla.edu/studentunion/su_map_kh_2.asp
WHEN
November 3, 2019 - Sunday
(Building address will be updated closer to the event, times may change slightly)
9:30am - 10:00am : Check In
10:00am - 12:30pm : ADNP Family Conference, including talks by researchers and clinical teams
12:30pm - 1:30pm : Lunch provided
1:30pm - 3:30pm : Scientific Symposium
4:30 pm: Event Ends
The lecture will take place in a lecture hall down the street from the Kerckhoff building. For those of you who do not wish to attend, we will have our event space until 4:30 and plan to go to dinner afterwards with anyone interested. This information will be sent out on the Facebook ADNP Parent Support Page
There is a family meet up happening on Saturday night. You can be put on the list by accessing the group on the Facebook ADNP Parent Support Page.
If you have questions or concerns please email [email protected].
(Building address will be updated closer to the event, times may change slightly)
9:30am - 10:00am : Check In
10:00am - 12:30pm : ADNP Family Conference, including talks by researchers and clinical teams
12:30pm - 1:30pm : Lunch provided
1:30pm - 3:30pm : Scientific Symposium
4:30 pm: Event Ends
The lecture will take place in a lecture hall down the street from the Kerckhoff building. For those of you who do not wish to attend, we will have our event space until 4:30 and plan to go to dinner afterwards with anyone interested. This information will be sent out on the Facebook ADNP Parent Support Page
There is a family meet up happening on Saturday night. You can be put on the list by accessing the group on the Facebook ADNP Parent Support Page.
If you have questions or concerns please email [email protected].
SPEAKERS/DISCUSSIONS
There could be changes made to this list.
PRESENTATION SPEAKERS:
PRESENTATION SPEAKERS:
- Professor Illana Gozes, Tel Aviv University and Coronis Neurosciences
- Professor Alex Kolevzon, Seaver Autism Center, Icahn School of Medicine at Mount Sinai
- Dr. Anne Arnett, Bernier Lab, University of Washington
- Mr. Shlomo Sragovich, Tel Aviv University
- Professor Daniel Geschwind
- Dr. Tom Nakamachi, University of Toyama
- Dr. Markus Haimsaat, Charite University Medicine Berlin
- Sandra Sermone, ADNP Kids Research Foundation
REGISTER FOR THE CONFERENCE!
LODGING AND GROUND TRANSPORTATION
LODGING: The suggested lodging noted by UCLA for their conference are as follows: The W Hotel Los Angeles - West Beverly 930 Hilgard Ave, Los Angeles Ca 90024 (310) 208-8765 Kimpton Hotel Palomar 10740 Wilshire Blvd, Los Angeles Ca 90024 (310) 475-8711 *These are just a couple of recommendations of hotels close to the UCLA campus, there are many more options for families to choose from. LOCAL NEIGHBORHOODS AND THINGS TO DO: UCLA Campus Explore all that the UCLA campus has to offer — museums, landmark buildings displaying stunning architecture, performances from the Center for the Art of Performance (CAP) at UCLA, world-renowned gardens, and more. Westwood Village Westwood Village is UCLA's unofficial "college town." This local shopping and dining district directly south of campus is only a several minute walk from most major campus attractions and buildings. Westwood has a prominent place in Los Angeles film and entertainment history, with several vintage landmark theaters. Beverly Hills & Hollywood Beverly Hills is one of the most well-known neighborhoods and shopping districts in the world, boasting many upscale retail stores, fashion houses, and restaurants along famous streets like Rodeo Drive. Hollywood is a short driving distance from Beverly Hills and is one of the world's meccas for film and entertainment. Downtown Los Angeles Downtown Los Angeles is home to both a rich history, found in magnificent buildings like Union Station, and stunning contemporary attractions, like the Walt Disney Concert Hall designed by architect, Frank Gehry. Visitors to the downtown area can easily enjoy a variety of cultural experiences in a single day, simply by walking between the close-knit ethnic neighborhoods in the city, such as Chinatown and Little Tokyo. The city is also divided into different arts and merchant districts, such as the Fashion District, Gallery Row, the Toy District, and more. Beach Cities From Malibu to the Port of Los Angeles, the beach cities of Los Angeles are picturesque and home to many iconic attractions, including Santa Monica Pier, the eclectic Venice Beach Promenade, Muscle Beach, and more. Visitors to this area can enjoy fresh seafood, innovative California cuisine, and a variety of outdoor activities, such as biking, hiking, and surfing — perfect ways to take advantage of Southern California's mild and sunny climate. POPULAR ATTRACTIONS
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