YEAR END 2017 LETTER FROM THE PRESIDENT
Thinking Back - Looking Forward
Dear Friends, It has been a very exciting and successful year for the ADNP Kids Research Foundation! In keeping with our mission statement, we have accomplished some amazing projects---here is the short list---
- Received 501(c)3 status as an IRS accredited non profit organization.
- Biomarker (early tooth eruption) publication made big news!
- Announcement of ADNP Syndrome Study at the Seaver Center for Autism at Mount Sinai for Research and Treatment.
- Donated over $15,000 directly through the foundation with an additional $20,000 outside of the foundation.
- Announcement and support for advancement toward the Cornois Neurosciences clinical trial of CP201/NAP for ADNP Syndrome.
- Continued support and enrollment of the TIGER STUDY - The Investigation of Genetic Exome Research.
- Continued support and enrollment of the Cognitive Genetics continuation of ADNP Syndrome project based out of the University of Antwerp.
- Participated in several events in Washington DC (Capital, NIH, FDA, Rare Disease Day) to raise awareness about ADNP.
- ADNP Syndrome presentations given in Seattle and Philadelphia
In an effort to create a diverse Board of Directors with experience that will benefit the mission of the foundation, we have made some changes to our team. To simplify we have reduced the board to 5 volunteer Board of Director positions (with 3 parents and 2 non-parents).
- Sandra Sermone (parent) Founder/President
- Genie Egerton-Warburton (parent) Vice President
- Lenore Rath (parent) Secretary
- Tim Mosier (non-parent) Treasurer
- Debbie Abraham (non-parent) Director
The Board of Directors of the ADNP-KRF is engaged in supporting the ADNP community in multiple ways. We ask that you will also support our mission and our projects by any or all the following ways---
- Sign up for our ADNP-KRF newsletter
- Join our social media sites
- Volunteer at a ADNP-KRF event
- Hold a fundraiser
- Make a donation
Please visit www.adnpfoundation.org for more information.
All of these accomplishments and future projects have been made possible by an all-volunteer team and our generous and caring supporters. Thank you!
Sandra Sermone
President
ADNP Kids Research Foundation
