TIGER STUDY
University of Washington
​Bernier Lab
​
If your child has received an ADNP diagnosis, you are also eligible to participate in the TIGER STUDY at the University of Washington.  They are doing research on genetic caused syndromic autism gene mutations such as ADNP.  In a recent publication the lead investigator of the study Dr. Raphe Bernier stated that "ADNP is edging its way up the research agenda" and that is because more and more ADNP families are participating.   

The TIGER Study conducts a comprehensive assessment of individuals with genetic events associated with ASD, ID, and/or DD in order to better describe how different genetic events impact behavior in children and adults.
Participation includes a visit to the University of Washington in Seattle during which we will conduct a clinical assessment, neurocognitive assessment, EEG, 2 dimension and 3 dimension photos, language testing, medical examination, a blood draw, an optional skin biopsy, and collect a detailed developmental history.

Expenses related to the study visit (such as airfare and lodging) will be covered by the study and subjects will be reimbursed $100 for their participation.
 Please contact them for more current information at THE TIGER STUDY.

HOME. ABOUT. RESEARCH. SUPPORT-US. PRIVACY-POLICY. ADNP SYNDROME. ADNP GENE. SYNDROME PHENOTYPE.


All rights reserved. No portion of the content of this website may be reproduced in any manner without the written permission of the author/creator.   Any information used from this website must also have credit noted to ADNP Kids Research Foundation / www.adnpfoundation.org. The information on this website is not substitute for personal diagnosis or medical care advise. Families and patients should consult a medically qualified clinician in all matters relating to genetic diagnosis, management and health. Information on ADNP changes is a very fast-moving field and while the information in this guide is believed to be the best available at the time of publication, some facts may later be updated or change. Please see additional disclosures on our PRIVACY POLICY page.