As an ultra rare condition that, ADNP syndrome, struggles to attract funding from larger research funding bodies to develop a treatment or cure.  The ADNP Kids Research Foundation aims to ensure this devastating conditions receives the research attention and funding it requires and deserves.

OUR RESEARCH STRATEGY
To address this lack of funding, the ADNP Kids Research Foundation has developed a research strategy that aims to maximize the impact of the funds we invest, and identifies research areas that provide the greatest scientific advances toward treatments, a cure and the most relevance for our families. 

RESEARCH FOCUS AREAS
ADNP Kids Research Foundation is committed to advancing research in ADNP by creating "assets" that will help accelerate research, such as animal models, IPC lines, blood biobank, fibroblast biobank, as well as contact and patient registries.  We move to advance therapeutic approaches in both pharmaceutical and gene therapy, closer to clinical trials.  

RESEARCH PRINCIPLES
In developing an overall ADNP research plan, the ADNP Kids Research Foundation emphasizes three basic principles:

• Fund the best research
• Focus on Translational Research to bring treatments to children with ADNP as soon as possible
• Encourage innovation and collaboration

HOW WE FUND RESEARCH
Raised primarily through grassroots fundraising activities initiated by the foundation, our supporters and our amazing ADNP families.

The ADNP Kids Research Foundation is committed to ensuring our charitable funding is used to support research with the greatest scientific likelihood of impacting children affected by ADNP. 

For research grants or research sponsorship, the ADNP Kids Research Foundation does not provide indirect costs to researchers.

Learn about our CURRENT RESEARCH PROJECTS here.