Help Find New Treatments For ADNP Syndrome
Are you interested in having your family or your individual with ADNP Syndrome participate in research studies? If you are, please register below. As new studies become available, the ADNP-KRF will contact known ADNP Syndrome families who have registered below with the opportunity to participate.
Are you interested in having your family or your individual with ADNP Syndrome participate in research studies? If you are, please register below. As new studies become available, the ADNP-KRF will contact known ADNP Syndrome families who have registered below with the opportunity to participate.
CURRENT RESEARCH PROJECTS
According to the Global Genes Project, Rare and genetic diseases affect 30 million people in the United States, and 300 million people globally. Approximately 80 percent are caused by faulty genes. The NIH estimates that 50% of the people affected are children, making rare diseases one of the most deadly and debilitating for children worldwide.
New technologies are reducing diagnostic time and great hopes are held for genetic or cell therapy in the near future