ADNP Kids Research Foundation
  • About
    • What is ADNP
    • Our Story
    • Our Mission & Team
  • RESEARCH
    • Research Update 2.2024
    • ADNP Patient Registry & Natural History
    • Research Projects 2023
    • Research Strategy
    • Ketamine Trial
    • Ketamine Trial Publication
    • Ketamine Update
  • FAMILIES
  • NEWS
    • Giving Tuesday
    • NET Collaboration Study
    • Ketamine Trial Phase 2 Announcement >
      • Glimpse of Hope RDD 2020
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • DONATE/SUPPORT
    • Warrior Fun Run >
      • Past Fun Run Pictures
      • Sponsorship Opportunity
    • Third Party Fundraising
    • ADNP STORE
  • contact us
  • ADNP STORE
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JOHN 2020-2021 

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Our sweet, sweet baby John was one of the most gentle, joyous and benevolent characters I have ever known and had so much magic to share and so many things to enjoy. He impressed me, despite his struggles, and continued to be awed by life and showing up daily to be present and do his exercises and make the most of his life. He was really special and he loved to look at little Christmas lights hanging around our window where he could also see the trees swaying high above. He was a survivor and exceeded all my expectations on his milestones and behavior and was a true pleasure to be around. Our family will be forever touched by his life and his impression on us. Not someone easily forgotten. I pray that his life may help aide the life of another or may bring some answers to those who are lost. Your family and all those who knew you, love you, baby boy. We’ll never forget you.
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Privacy Policy  |  Terms of Services  |  Other Policies  
All rights reserved. No portion of the content of this website may be reproduced in any manner without the written permission of the author/creator.   Any information used from this website must also have credit noted to ADNP Kids Research Foundation / www.adnpfoundation.org.
Disclosure: This page represents information known to the best of our knowledge.  Given the sensitivity and fast changing pace of research and drug development, some of the information posted on our website www.adnpfoundation.org may be inaccurate or not complete, therefor this information should be confirmed by the reader. Additionally, the medical information on this website is not substitute for personal diagnosis or medical care advise. Families and patients should consult a medically qualified clinician in all matters relating to genetic diagnosis, disease management and health. Information on ADNP research is a very fast-moving field and while the information here is believed to be the best available at the time of publication, some facts may later be updated or change. Please see additional disclosures on our PRIVACY POLICY page.
  • About
    • What is ADNP
    • Our Story
    • Our Mission & Team
  • RESEARCH
    • Research Update 2.2024
    • ADNP Patient Registry & Natural History
    • Research Projects 2023
    • Research Strategy
    • Ketamine Trial
    • Ketamine Trial Publication
    • Ketamine Update
  • FAMILIES
  • NEWS
    • Giving Tuesday
    • NET Collaboration Study
    • Ketamine Trial Phase 2 Announcement >
      • Glimpse of Hope RDD 2020
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • DONATE/SUPPORT
    • Warrior Fun Run >
      • Past Fun Run Pictures
      • Sponsorship Opportunity
    • Third Party Fundraising
    • ADNP STORE
  • contact us
  • ADNP STORE