ADNP Kids Research Foundation
  • About
    • What is ADNP
    • Our Story
    • Our Mission & Team
  • RESEARCH
    • Research Update 2.2024
    • ADNP Patient Registry & Natural History
    • Research Projects 2023
    • Research Strategy
    • Ketamine Trial
    • Ketamine Trial Publication
    • Ketamine Update
  • FAMILIES
  • NEWS
    • Giving Tuesday
    • NET Collaboration Study
    • Ketamine Trial Phase 2 Announcement >
      • Glimpse of Hope RDD 2020
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • DONATE/SUPPORT
    • Warrior Fun Run >
      • Past Fun Run Pictures
      • Sponsorship Opportunity
    • Third Party Fundraising
    • ADNP STORE
  • contact us
  • ADNP STORE

Never doubt that parents working together can do great things

WELCOME!

Whether you're just discovering this page or returning for more insight: WELCOME.

Seeking support isn't always easy, so your presence here speaks volumes about your courage.

Yes, courageous. Courageous for envisioning a different future. Courageous for stepping beyond your comfort zone to delve into the complexities of science akin to learning a new language. Courageous for navigating through days brimming with doctor appointments, therapist evaluations, IEP meetings, insurance calls, and logistical challenges that could rival coordinating military operations. And beyond.

​Your courage shines through because this journey is undeniably tough.

ADNP syndrome presents an uphill climb, marked by triumphant victories and heartrending setbacks, monumental achievements and trials so daunting they steal your breath away. Amidst the beauty and grace we strive to find in our daily lives, the ADNP community shares a common thread: the hope, the belief, that a brighter future awaits our loved ones. A future where adorned with a better future. What once seemed an audacious dream now feels within reach.

But it will demand perseverance—more than you ever imagined—to reach that destination. It's a challenging yet inspiring path toward a future teeming with boundless, unforeseeable opportunities, and the only route is together.

Take that first, or next, step below:

Newly Diagnosed

Meet our ADNP Warriors

ADNP Patient Registry

ADNP Family Conference 

Understanding Genetics

Understanding Gene Therapy

Understanding Drug Screening

WHAT IS ADNP SYNDROME FULL DOCUMENT
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Privacy Policy  |  Terms of Services  |  Other Policies  
All rights reserved. No portion of the content of this website may be reproduced in any manner without the written permission of the author/creator.   Any information used from this website must also have credit noted to ADNP Kids Research Foundation / www.adnpfoundation.org.
Disclosure: This page represents information known to the best of our knowledge.  Given the sensitivity and fast changing pace of research and drug development, some of the information posted on our website www.adnpfoundation.org may be inaccurate or not complete, therefor this information should be confirmed by the reader. Additionally, the medical information on this website is not substitute for personal diagnosis or medical care advise. Families and patients should consult a medically qualified clinician in all matters relating to genetic diagnosis, disease management and health. Information on ADNP research is a very fast-moving field and while the information here is believed to be the best available at the time of publication, some facts may later be updated or change. Please see additional disclosures on our PRIVACY POLICY page.
  • About
    • What is ADNP
    • Our Story
    • Our Mission & Team
  • RESEARCH
    • Research Update 2.2024
    • ADNP Patient Registry & Natural History
    • Research Projects 2023
    • Research Strategy
    • Ketamine Trial
    • Ketamine Trial Publication
    • Ketamine Update
  • FAMILIES
  • NEWS
    • Giving Tuesday
    • NET Collaboration Study
    • Ketamine Trial Phase 2 Announcement >
      • Glimpse of Hope RDD 2020
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • DONATE/SUPPORT
    • Warrior Fun Run >
      • Past Fun Run Pictures
      • Sponsorship Opportunity
    • Third Party Fundraising
    • ADNP STORE
  • contact us
  • ADNP STORE