ADNP Kids Research Foundation
  • About Us
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      • 501(c)(3) Determination
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  • WHAT IS ADNP
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      • HIGHLIGHTS- ADNP Syndrome Family Conference
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    • Seaver Autism Center
    • Ketamine Trial Phase 2
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  • NEWS
    • NET Collaboration Study
    • Glimpse of Hope For ADNP Patients
    • ketamine
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
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    • NEWS - p.Tyr719* Case Study
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Genie Egerton-Warburton
VICE PRESIDENT

Genie Rice Egerton-Warburton joined the foundation as Board Director in January 2017 and was elected Vice President in December 2017.

Ms. Egerton-Warburton was born and raised in Manhattan, NY. She graduated from Lynchburg College (BA) and received her masters of science (MSED) in early childhood education from Bank Street College of Education.She taught pre-school for 9 years at The Brick Church School and then joined the admissions teams at St. David’s school for 2 years and Nightingale Bamford School for 1 year. Soon after she worked in on-going school placement as an assistant at Wilcox Educational Placement for founder Vanessa Wilcox.

She is a mother of a blended family of five children. Ms. Egerton-Warburton is a stepmotherof twins, Avery & Brooke (17) and mother of Taylor (15), Charlotte (8) and Rowland (6).

She was the head of the Lower School Parent’s Association at the Ross School located in Bridgehampton, NY for 5 years.
Not only are her hands on experience in early childhood education a main priority but she has a background and major in communications and television news as she worked at CBS for 3 summers as an intern for the morning show, 60 minutes and As the World Turns. She worked as a page and was in on air skits on The David Letterman show for almost 2 years. She also worked at Bloomberg Market, Commodities and News before getting her masters degree in education.
​​
Ms. Egerton-Warburton currently sits on the Associate Board at the Seaver Autism Center which is currently running a comprehensive study of ADNP syndrome and other autistic related syndromes.   She has also obtained a 501(c)3 to create an ABA based school in the Hamptons for autistic children and is looking to merge with a special needs school to create this new school in the near future as she has been fighting for a suitable school for her son Rowland and other children with autistic disorders who reside in Eastern Long Island.


Ms. Egerton-Warburton is dedicated to finding a cure for her husband’s rare desmoid sarcoma and her youngest son’s most recent diagnoses of ADNP related syndrome.
Articles including Genie Egerton-Warburton:


​The Baby Nation Show - Toly and the ADNP Tribe:
​https://themamaco.com/blogs/news/ep-65-roly-the-adnp-tribe


Health Central - ADNP Syndrome: From Powerless to Empowered
https://www.healthcentral.com/article/fighting-back-against-adnp-syndrome

Seaver Center for Autism- finding a cure:
http://icahn.mssm.edu/research/seaver/patients/stories/rowland

Orange Socks teaser interview (Whole Family)
Extensive Orange Socks Interview about finding out about Rowland’s diagnosis and how we live day to day.
http://orangesocks.org/genie-adnp-syndrome/

CBS Story
https://www.cbsnews.com/video/mom-leads-fight-for-son-with-rare-disease/

EAST END ISSUES:
http://mobile.easthamptonstar.com/Education/2018222/Family-Copes-Rare-Disease

http://www.27east.com/mobile/article.cfm/General-Interest-EH/547201/A-Fight-For-More-The-Challenge-Of-Educating-Children-With-Autism-From-The-Parents-Perspective

http://mobile.easthamptonstar.com/Government/20171109/East-Hampton-Town-Buys-Second-Squaw-Road-Lot

http://mobile.easthamptonstar.com/Education/20171130/Superintendents-Oppose-Gersh-Academy

http://mobile.easthamptonstar.com/Education/20171207/Parents-Go-Battle-Over-Autism-Services
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All rights reserved. No portion of the content of this website may be reproduced in any manner without the written permission of the author/creator.   Any information used from this website must also have credit noted to ADNP Kids Research Foundation / www.adnpfoundation.org. The information on this website is not substitute for personal diagnosis or medical care advise. Families and patients should consult a medically qualified clinician in all matters relating to genetic diagnosis, management and health. Information on ADNP changes is a very fast-moving field and while the information in this guide is believed to be the best available at the time of publication, some facts may later be updated or change. Please see additional disclosures on our PRIVACY POLICY page.
  • About Us
    • Our Mission Our Vision Our Goal >
      • 501(c)(3) Determination
    • Board of Directors
    • Medical and Scientific Advisory Board
  • WHAT IS ADNP
    • Newly Diagnosed
    • ADNP Syndrome Full Description
    • ADNP GENE
    • Phenotype/Symptoms List
  • Connect
    • Contact Registry
    • contact us
    • ADNP Family Conference >
      • HIGHLIGHTS- ADNP Syndrome Family Conference
      • TSA Travel Help
      • #CureADNP
  • RESEARCH
    • TREATMENT RESEARCH & DEVELOPMENT UPDATES
    • Seaver Autism Center
    • Ketamine Trial Phase 2
    • publications
  • NEWS
    • NET Collaboration Study
    • Glimpse of Hope For ADNP Patients
    • ketamine
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • ADNP STORE
  • DONATE/SUPPORT
    • WARRIOR FUN RUN >
      • WARRIOR FUN RUN PHOTO RELEASE