ADNP Kids Research Foundation
  • About Us
    • Our Mission Our Vision Our Goal >
      • 501(c)(3) Determination
    • Board of Directors
    • Medical and Scientific Advisory Board
  • WHAT IS ADNP/HVDAS?
    • Newly Diagnosed
    • ADNP Syndrome Full Description
    • ADNP GENE
    • Phenotype/Symptoms List
  • Connect
    • Contact Registry
    • contact us
  • RESEARCH
    • TREATMENT RESEARCH & DEVELOPMENT
    • Seaver Autism Center
    • Ketamine Trial Phase 2
    • publications
  • NEWS
    • Glimpse of Hope For ADNP Patients
    • ketamine
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • ADNP STORE
  • DONATE/SUPPORT
    • WARRIOR FUN RUN >
      • WARRIOR FUN RUN PHOTO RELEASE
  • ADNP Family Conference
    • HIGHLIGHTS- ADNP Syndrome Family Conference
    • TSA Travel Help
    • #CureADNP

CONTACT REGISTRY


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PATIENT CONTACT REGISTRY - stay up-to-date and informed on opportunities for research and the latest information regarding ADNP Syndrome

You will also receive family meeting announcements, special mailings, and information regarding any discoveries about ADNP Syndrome impacting care decisions.

Our Contact Registry is NOT shared with external organizations.  We will NOT use Contact Registry for marketing.  We may use aggregate data from the Contact Registry to publish statistics about the incidence of ADNP Syndrome.

By completing this form, I agree to allow ADNP Kids Research Foundation to store information about myself and/or my dependent with ADNP Syndrome so that I may be contacted with information about research opportunities and updates about US and International medical discovering impacting care decisions about ADNP Syndrome.  I understand that my data may be used in aggregate to compile and publish statistics about the incidence of ADNP Kids Research Foundation

For an added level of security, our data is collected and stored on a business HIPAA compliant Survey Monkey platform.

THIS IS A PATIENT CONTACT REGISTRY, IF YOU HAVE ANY QUESTIONS, PLEASE COMPLETE THE CONTACT US FORM

Click here to join CONTACT REGISTRY 

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First ADNP Family Meeting at UCLA, California

HOME. ABOUT. RESEARCH. SUPPORT-US. PRIVACY-POLICY. ADNP SYNDROME. ADNP GENE. SYNDROME PHENOTYPE.


All rights reserved. No portion of the content of this website may be reproduced in any manner without the written permission of the author/creator.   Any information used from this website must also have credit noted to ADNP Kids Research Foundation / www.adnpfoundation.org. The information on this website is not substitute for personal diagnosis or medical care advise. Families and patients should consult a medically qualified clinician in all matters relating to genetic diagnosis, management and health. Information on ADNP changes is a very fast-moving field and while the information in this guide is believed to be the best available at the time of publication, some facts may later be updated or change. Please see additional disclosures on our PRIVACY POLICY page.
  • About Us
    • Our Mission Our Vision Our Goal >
      • 501(c)(3) Determination
    • Board of Directors
    • Medical and Scientific Advisory Board
  • WHAT IS ADNP/HVDAS?
    • Newly Diagnosed
    • ADNP Syndrome Full Description
    • ADNP GENE
    • Phenotype/Symptoms List
  • Connect
    • Contact Registry
    • contact us
  • RESEARCH
    • TREATMENT RESEARCH & DEVELOPMENT
    • Seaver Autism Center
    • Ketamine Trial Phase 2
    • publications
  • NEWS
    • Glimpse of Hope For ADNP Patients
    • ketamine
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • ADNP STORE
  • DONATE/SUPPORT
    • WARRIOR FUN RUN >
      • WARRIOR FUN RUN PHOTO RELEASE
  • ADNP Family Conference
    • HIGHLIGHTS- ADNP Syndrome Family Conference
    • TSA Travel Help
    • #CureADNP