CONTACT REGISTRY
PATIENT CONTACT REGISTRY - stay up-to-date and informed on opportunities for research and the latest information regarding ADNP Syndrome
You will also receive family meeting announcements, special mailings, and information regarding any discoveries about ADNP Syndrome impacting care decisions.
Our Contact Registry is NOT shared with external organizations. We will NOT use Contact Registry for marketing. We may use aggregate data from the Contact Registry to publish statistics about the incidence of ADNP Syndrome.
By completing this form, I agree to allow ADNP Kids Research Foundation to store information about myself and/or my dependent with ADNP Syndrome so that I may be contacted with information about research opportunities and updates about US and International medical discovering impacting care decisions about ADNP Syndrome. I understand that my data may be used in aggregate to compile and publish statistics about the incidence of ADNP Kids Research Foundation
For an added level of security, our data is collected and stored on a business HIPAA compliant Survey Monkey platform.
THIS IS A PATIENT CONTACT REGISTRY, IF YOU HAVE ANY QUESTIONS, PLEASE COMPLETE THE CONTACT US FORM
You will also receive family meeting announcements, special mailings, and information regarding any discoveries about ADNP Syndrome impacting care decisions.
Our Contact Registry is NOT shared with external organizations. We will NOT use Contact Registry for marketing. We may use aggregate data from the Contact Registry to publish statistics about the incidence of ADNP Syndrome.
By completing this form, I agree to allow ADNP Kids Research Foundation to store information about myself and/or my dependent with ADNP Syndrome so that I may be contacted with information about research opportunities and updates about US and International medical discovering impacting care decisions about ADNP Syndrome. I understand that my data may be used in aggregate to compile and publish statistics about the incidence of ADNP Kids Research Foundation
For an added level of security, our data is collected and stored on a business HIPAA compliant Survey Monkey platform.
THIS IS A PATIENT CONTACT REGISTRY, IF YOU HAVE ANY QUESTIONS, PLEASE COMPLETE THE CONTACT US FORM
First ADNP Family Meeting at UCLA, California