ADNP Kids Research Foundation
  • About Us
    • Our Mission Our Vision Our Goal >
      • 501(c)(3) Determination
    • Board of Directors
    • Medical and Scientific Advisory Board
  • WHAT IS ADNP
    • Newly Diagnosed
    • ADNP Syndrome Full Description
    • ADNP GENE
    • Phenotype/Symptoms List
  • Connect
    • Contact Registry
    • contact us
    • ADNP Family Conference >
      • HIGHLIGHTS- ADNP Syndrome Family Conference
      • TSA Travel Help
      • #CureADNP
  • RESEARCH
    • TREATMENT RESEARCH & DEVELOPMENT UPDATES
    • Seaver Autism Center
    • Ketamine Trial Phase 2
    • publications
  • NEWS
    • NET Collaboration Study
    • Glimpse of Hope For ADNP Patients
    • ketamine
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • ADNP STORE
  • DONATE/SUPPORT
    • WARRIOR FUN RUN >
      • WARRIOR FUN RUN PHOTO RELEASE
ADNP Kids Research Foundation
a Washington State 501(c)3 non-profit organization incorporated on May 26, 2016
UBI #603-622-515
EIN #30-0964243
Contact us at ADMIN@adnpfoundation.org

Meet Our TEAM

BOARD OF DIRECTORS
SANDRA BEDROSIAN-SERMONE
Founder, President
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click picture for bio

GENIE EGERTON-WARBURTON
Vice President
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click picture for bio

LENORE RATH
Secretary
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click picture for bio

TIM MOSIER
​Treasurer
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DEBBIE ABRAHAM
Director at Large
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MEDICAL AND SCIENTIFIC ADVISORY BOARD
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Click Here to view Medical and Scientific Advisory Board

MAP

INTERNATIONAL AMBASSADOR FAMILIES
​
coming soon

Australia
Belgium
Canada
Denmark
Germany
Netherlands
Norway
UK

HOME. ABOUT. RESEARCH. SUPPORT-US. PRIVACY-POLICY. ADNP SYNDROME. ADNP GENE. SYNDROME PHENOTYPE.


All rights reserved. No portion of the content of this website may be reproduced in any manner without the written permission of the author/creator.   Any information used from this website must also have credit noted to ADNP Kids Research Foundation / www.adnpfoundation.org. The information on this website is not substitute for personal diagnosis or medical care advise. Families and patients should consult a medically qualified clinician in all matters relating to genetic diagnosis, management and health. Information on ADNP changes is a very fast-moving field and while the information in this guide is believed to be the best available at the time of publication, some facts may later be updated or change. Please see additional disclosures on our PRIVACY POLICY page.
  • About Us
    • Our Mission Our Vision Our Goal >
      • 501(c)(3) Determination
    • Board of Directors
    • Medical and Scientific Advisory Board
  • WHAT IS ADNP
    • Newly Diagnosed
    • ADNP Syndrome Full Description
    • ADNP GENE
    • Phenotype/Symptoms List
  • Connect
    • Contact Registry
    • contact us
    • ADNP Family Conference >
      • HIGHLIGHTS- ADNP Syndrome Family Conference
      • TSA Travel Help
      • #CureADNP
  • RESEARCH
    • TREATMENT RESEARCH & DEVELOPMENT UPDATES
    • Seaver Autism Center
    • Ketamine Trial Phase 2
    • publications
  • NEWS
    • NET Collaboration Study
    • Glimpse of Hope For ADNP Patients
    • ketamine
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • ADNP STORE
  • DONATE/SUPPORT
    • WARRIOR FUN RUN >
      • WARRIOR FUN RUN PHOTO RELEASE