Connect with a Parent Ambassador near you!
PLEASE SEARCH BELOW AND REACH OUT TO A PARENT AMBASSADOR IN YOUR AREA.
ADNP is 24/7. As a parent or caregiver of a child living with ADNP, it can often be overwhelming and isolating because there are just not a lot of people who understand how challenging it is. One of the main missions of the ADNP Kids Research Foundation is providing support for families because you are not alone in this journey.
If you would like to connect to other families living in your area, please search below to see if there is a Parent Ambassador in your area. Connecting with other families is one of the best ways to get support and learn about what is going on in our ADNP community.
If you do not have a Parent Ambassador in your area, please check back at a later date to see if we have updated our list. Also, if you would like to volunteer as a parent ambassador, please read below.
ADNP is 24/7. As a parent or caregiver of a child living with ADNP, it can often be overwhelming and isolating because there are just not a lot of people who understand how challenging it is. One of the main missions of the ADNP Kids Research Foundation is providing support for families because you are not alone in this journey.
If you would like to connect to other families living in your area, please search below to see if there is a Parent Ambassador in your area. Connecting with other families is one of the best ways to get support and learn about what is going on in our ADNP community.
If you do not have a Parent Ambassador in your area, please check back at a later date to see if we have updated our list. Also, if you would like to volunteer as a parent ambassador, please read below.
We are NOT ALONE, because we have each other.
We raise our children TOGETHER,
We celebrate our children TOGETHER
We love our children TOGETHER,
We share HOPE for a better future for our children TOGETHER,
We raise our children TOGETHER,
We celebrate our children TOGETHER
We love our children TOGETHER,
We share HOPE for a better future for our children TOGETHER,
ADNP KIDS RESEARCH FOUNDATION
WORLDWIDE PARENT AMBASSADOR TEAM
WORLDWIDE PARENT AMBASSADOR TEAM
EUROPE
Christiane - ADNP Ambassador - GERMANY
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Andrea - ADNP Ambassador - ITALY
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Joanna - ADNP Ambassador - POLAND
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Ana - ADNP Ambassador - PORTUGAL
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Romana - ADNP Ambassador - SWITZERLAND
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Becky - ADNP Ambassador - UK
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Jane - ADNP Ambassador - UK
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LATIN AMERICA
Fabiane - ADNP Ambassador LATIN AMERICA
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Marco - ADNP Ambassador LATIN AMERICA
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ADNP KIDS RESEARCH FOUNDATION
UNITED STATES PARENT AMBASSADOR TEAM
UNITED STATES PARENT AMBASSADOR TEAM
Audra - USA - Connecticut
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Alyssa - USA - Florida
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Ashley - USA - Georgia
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Stephanie - USA - Idaho
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Marylynn - USA - Illinois
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Heather - USA - Iowa
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Tamara - USA - Massachusetts
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Britni - USA - Maine
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Jennifer - USA - Michigan
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Ayala - USA - Pennsylvania
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Amanda - USA - Rhode Island
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Miranda - USA - Texas
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Mary - USA - Virginia
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PARENT AMBASSADOR PROGRAM:
Our volunteer Parent Ambassadors are parent leaders committed to representing the foundations efforts of advocacy, research and development of treatments, and to most importantly be support systems for ADNP families in their country/region.
This journey is complicated by the lack of knowledge that exists with ADNP syndrome. As our patient populations grows, the ability to connect with other families can help tremendously by offering support and guidance as families begin to navigate through this rare disease. We hope to help families obtain the most up to date information on ADNP syndrome, access to all available resources and support and most importantly, to connect on a regular basis with family meetups, because this is a difficult road for parents, and support from one another is tremendously important.
Some functions of a Worldwide Parent Ambassador are:
Volunteer Parent Ambassadors are needed to unite their location to the foundation. We need to all work as a united team. We are passionate about building and upholding relationships within the ADNP community.
If you would like to be a ADNP volunteer Parent Ambassador in your country/region, please email admin@adnpfoundation.org.
Our volunteer Parent Ambassadors are parent leaders committed to representing the foundations efforts of advocacy, research and development of treatments, and to most importantly be support systems for ADNP families in their country/region.
This journey is complicated by the lack of knowledge that exists with ADNP syndrome. As our patient populations grows, the ability to connect with other families can help tremendously by offering support and guidance as families begin to navigate through this rare disease. We hope to help families obtain the most up to date information on ADNP syndrome, access to all available resources and support and most importantly, to connect on a regular basis with family meetups, because this is a difficult road for parents, and support from one another is tremendously important.
Some functions of a Worldwide Parent Ambassador are:
- Answering questions about ADNP syndrome and/or providing directions to find information on ADNP syndrome
- Answering questions about local services possibly available in their region.
- Sharing information on current research and drug development
- Connecting families in their region
- Offering support and friendship
- Helping families with the ADNP patient registry, the biobank and fundraising
- Facilitate conversations with researchers or pharma in their region
- AND OUR FAVORITE FUNCTION: Setting up in-person or online-virtual family “Meet-Ups”
Volunteer Parent Ambassadors are needed to unite their location to the foundation. We need to all work as a united team. We are passionate about building and upholding relationships within the ADNP community.
If you would like to be a ADNP volunteer Parent Ambassador in your country/region, please email admin@adnpfoundation.org.
