ADNP Kids Research Foundation
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​Connect with a Parent Ambassador near you!

PLEASE SEARCH BELOW AND REACH OUT TO A PARENT AMBASSADOR IN YOUR AREA.  
ADNP is 24/7.  As a parent or caregiver of a child living with ADNP, it can often be overwhelming and isolating because there are just not a lot of people who understand how challenging it is.  One of the main missions of the ADNP Kids Research Foundation is providing support for families because you are not alone in this journey. 

If you would like to connect to other families living in your area, please search below to see if there is a Parent Ambassador in your area.  Connecting with other families is one of the best ways to get support and learn about what is going on in our ADNP community.  


If you do not have a Parent Ambassador in your area, please check back at a later date to see if we have updated our list.  Also, if you would like to volunteer as a parent ambassador, please read below.

We are NOT ALONE, because we have each other.
We raise our children TOGETHER,
We celebrate our children TOGETHER
We love our children TOGETHER,
​We share HOPE for a better future for our children TOGETHER,

ADNP KIDS RESEARCH FOUNDATION
WORLDWIDE PARENT AMBASSADOR TEAM

EUROPE
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Christiane - ADNP Ambassador - GERMANY
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Andrea - ADNP Ambassador - ITALY
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Joanna - ADNP Ambassador - POLAND
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Ana - ADNP Ambassador - PORTUGAL
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Romana - ADNP Ambassador - SWITZERLAND
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Becky - ADNP Ambassador - UK
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Jane - ADNP Ambassador - UK

LATIN AMERICA
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Fabiane - ADNP Ambassador LATIN AMERICA
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Marco - ADNP Ambassador LATIN AMERICA

ADNP KIDS RESEARCH FOUNDATION
UNITED STATES PARENT AMBASSADOR TEAM

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Audra - USA - Connecticut
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Alyssa - USA - Florida
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Ashley - USA - Georgia
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Stephanie - USA - Idaho
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Marylynn - USA - Illinois
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Heather - USA - Iowa
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Tamara - USA - Massachusetts
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Britni - USA - Maine
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Jennifer - USA - Michigan
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Ayala - USA - Pennsylvania
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Amanda - USA - Rhode Island
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Miranda - USA - Texas
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Mary - USA - Virginia
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PARENT AMBASSADOR PROGRAM:
Our volunteer Parent Ambassadors are parent leaders committed to representing the foundations efforts of advocacy, research and development of treatments, and to most importantly be support systems for ADNP families in their country/region.  

This journey is complicated by the lack of knowledge that exists with ADNP syndrome. As our patient populations grows, the ability to connect with other families can help tremendously by offering support and guidance as families begin to navigate through this rare disease. We hope to help families obtain the most up to date information on ADNP syndrome, access to all available resources and support and most importantly, to connect on a regular basis with family meetups, because this is a difficult road for parents, and support from one another is tremendously important.
 
Some functions of a Worldwide Parent Ambassador are:
  • Answering questions about ADNP syndrome and/or providing directions to find information on ADNP syndrome
  • Answering questions about local services possibly available in their region.
  • Sharing information on current research and drug development
  • Connecting families in their region
  • Offering support and friendship
  • Helping families with the ADNP patient registry, the biobank and fundraising
  • Facilitate conversations with researchers or pharma in their region
  • AND OUR FAVORITE FUNCTION:  Setting up in-person or online-virtual family “Meet-Ups”
 
Volunteer Parent Ambassadors are needed to unite their location to the foundation.  We need to all work as a united team.  We are passionate about building and upholding relationships within the ADNP community.
 
If you would like to be a ADNP volunteer Parent Ambassador in your country/region, please email admin@adnpfoundation.org. 
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Privacy Policy  |  Terms of Services  |  Other Policies  
All rights reserved. No portion of the content of this website may be reproduced in any manner without the written permission of the author/creator.   Any information used from this website must also have credit noted to ADNP Kids Research Foundation / www.adnpfoundation.org.
Disclosure: This page represents information known to the best of our knowledge.  Given the sensitivity and fast changing pace of research and drug development, some of the information posted on our website www.adnpfoundation.org may be inaccurate or not complete, therefor this information should be confirmed by the reader. Additionally, the medical information on this website is not substitute for personal diagnosis or medical care advise. Families and patients should consult a medically qualified clinician in all matters relating to genetic diagnosis, disease management and health. Information on ADNP research is a very fast-moving field and while the information here is believed to be the best available at the time of publication, some facts may later be updated or change. Please see additional disclosures on our PRIVACY POLICY page.
  • About
    • What is ADNP
    • Our Story
    • Our Mission
    • Our Team
    • Medical and Scientific Advisory Board
    • 501(c)(3) Determination
    • Inclusivity Statement
  • RESEARCH
    • Research Projects
    • Research Strategy
    • Ketamine Trial
    • Ketamine Trial Publication
    • Ketamine Update
    • Path to a cure
    • NET STUDY
    • publications
  • Families
    • Newly Diagnosed
    • ADNP Patient Registry
    • Contact Registry
    • Understanding the Basics
    • Worldwide Parent Ambassadors
    • contact us
    • ADNP Family Conference >
      • HIGHLIGHTS- ADNP Syndrome Family Conference
      • TSA Travel Help
      • #CureADNP
  • NEWS
    • NET Collaboration Study
    • Ketamine Trial Phase 2 Announcement
    • Mount Sinai Launches First Drug Trial for ADNP Syndrome
    • Seaver Midtown Partnership
    • Biomarker Discovered
    • NEWS - p.Tyr719* Case Study
    • NEWS HIGHLIGHTS- ADNP Syndrome Family Conference
  • ADNP STORE
  • DONATE/SUPPORT
    • Warrior Fun Run 2022 >
      • Past Fun Run Pictures
      • Sponsorship Opportunity
    • Boston Marathon
    • Third Party Fundraising
  • About Us new