It's that time of year again!
We would love to invite you to support our mission of helping to find our children treatments and a cure for ADNP syndrome by creating a team, joining an existing team, donating or becoming a Sponsor for our "3rd" annual Virtual Warrior Fun Run to be held September 24, 2022.
Established in 2016, the ADNP Kids Research Foundation is an accredited non-profit 501(c)(3) charity. We are a 100% volunteer organization run by families of children who suffer from this rare neurological genetic disorder, ADNP syndrome.
Charity organizations like ours NEED HELP from Sponsors like yourself because there are only 400 children diagnosed in the entire world. Because it affects such a small patient population, there is just no interest in industry or governmental funding. But we cannot wait, because TIME IS BRAIN! Each day that passes, our children suffer and loose the opportunity for their brains to develop correctly and the clock is ticking - we need to find treatments for our children as fast as possible!
To date, we are the worlds largest contributor of ADNP research in the world, sponsoring more than $1.5 million dollars directly into research! But we need millions more, and we cannot find treatments and a cure without the generous support from sponsors and donors. Check out our RESEARCH page to see many of the projects that we are currently working on!
Please join our WARRIOR FUN RUN! You can run, walk, bike, dance around (aka 'fun') or do just about anything you want to participate!
We would love to invite you to support our mission of helping to find our children treatments and a cure for ADNP syndrome by creating a team, joining an existing team, donating or becoming a Sponsor for our "3rd" annual Virtual Warrior Fun Run to be held September 24, 2022.
Established in 2016, the ADNP Kids Research Foundation is an accredited non-profit 501(c)(3) charity. We are a 100% volunteer organization run by families of children who suffer from this rare neurological genetic disorder, ADNP syndrome.
Charity organizations like ours NEED HELP from Sponsors like yourself because there are only 400 children diagnosed in the entire world. Because it affects such a small patient population, there is just no interest in industry or governmental funding. But we cannot wait, because TIME IS BRAIN! Each day that passes, our children suffer and loose the opportunity for their brains to develop correctly and the clock is ticking - we need to find treatments for our children as fast as possible!
To date, we are the worlds largest contributor of ADNP research in the world, sponsoring more than $1.5 million dollars directly into research! But we need millions more, and we cannot find treatments and a cure without the generous support from sponsors and donors. Check out our RESEARCH page to see many of the projects that we are currently working on!
Please join our WARRIOR FUN RUN! You can run, walk, bike, dance around (aka 'fun') or do just about anything you want to participate!